Notes
Introduction: The Disability Advantage
1. Rich Donovan, Return on Disability: Translate Different into Value, May 1, 2016, 2, http://www.rod-group.com/sites/default/files/2016%20Annual%20Report%20-%20The%20Global%20Economics%20of%20Disability.pdf.
2. Tara Bitran, “USC Disability Panel Emphasizes Initiative, Tenacity in Face of Bias in Hollywood,” Variety, May 2, 2018, https://variety.com/2018/artisans/news/usc-disability-good-doctor-1202794809/ (accessed June 28, 2019).
3. Ashley Chappo, “The Stunning Story of the Woman Who Is the World’s Most Popular Artist,” Observer, https://observer.com/2015/04/the-stunning-story-of-the-woman-who-is-the-worlds-most-popular-artist/ (accessed March 4, 2019).
4. Suyin Haynes, “The Story Behind TIME’s Greta Thunberg Cover,” Time, http://time.com/collection-post/5588274/greta-thunberg-time-cover-portrait/ (accessed May 31, 2019).
A Word about Words
1. For more details, see the US Census or Statistics Canada.
2. @GHMansfield, April 21, 2019.
3. Institute for the Study of the Neurologically Typical, http://erikengdahl.se/autism/isnt/index.html.
Lesson 1: If It Ain’t Broke, Don’t Fix It
What Gord Walker Taught Me
1. In memory of Gordon Walker (1953–2011).
Body Politics Catherine Frazee
2. Catherine Frazee, “Body Politics,” Saturday Night, September 2, 2000.
Brilliant Imperfection Eli Clare
3. CBC Radio, “‘My cerebral palsy isn’t a problem to be cured,’ says writer Eli Clare,” “Tapestry,” https://www.cbc.ca/radio/tapestry/rethinking-disability-1.4726131/my-cerebral-palsy-isn-t-a-problem-to-be-cured-says-writer-eli-clare-1.4726305 (accessed November 1, 2018).
4. CBC Radio, “‘My cerebral palsy isn’t a problem to be cured,’ says writer Eli Clare.”
5. CBC Radio.
6. Eli Clare, Brilliant Imperfection: Grappling with Cure (Durham, NC: Duke University Press, 2017).
7. Eli Clare, “Body Shame, Body Pride: Lessons from the Disability Rights Movement,” Live Journal, April 2, 2007, https://pitbull-poet.livejournal.com/21560.html (accessed November 6, 2018).
8. Clare, “Body Shame, Body Pride.”
The Gift Judith Snow
9. Judith Snow, recollection at a personal appearance, September 1985.
10. Judith Snow, personal conversation with the author, June 1989.
11. Great Questions: Writings of Judith Snow (Toronto, Canada: Inclusion Press, 2016), https://inclusion.com/product/great-questions-writings-of-judith-snow-ebook/.
A Brief History of Imperfection Dr. Stephen Hawking
12. Into the Universe with Stephen Hawking, miniseries, Discovery Channel, 2010.
13. Jessica Roy, “Erasing Stephen Hawking’s disability erases an important part of who he was,” Los Angeles Times, March 16, 2018, https://www.latimes.com/science/sciencenow/la-sci-sn-stephen-hawking-disability-rights-20180316-story.html.
14. Alan Lightman and Roberta Brawer, Origins: The Lives and Worlds of Modern Cosmologists (Cambridge, MA: Harvard University Press, 1990).
15. “Remember to look up at the stars: The best Stephen Hawking quotes,” Guardian, https://www.theguardian.com/science/2018/mar/14/best-stephen-hawking-quotes-quotations (accessed October 3, 2018).
If It Ain’t Broke, Don’t Fix It The Schappell Twins
16. Dulcie Pearce, “We have normal lives,” Sun, September 12, 2011, https://www.thesun.co.uk/archives/news/776690/we-have-normal-lives/ (accessed May 4, 2017).
17. Pearce, “We have normal lives.”
18. Pearce.
19. Natalie Angier, “Joined for Life, and Living Life to the Full,” New York Times, December 23, 1997, https://www.nytimes.com/1997/12/23/science/joined-for-life-and-living-life-to-the-full.html (accessed May 4, 2017).
20. Face to Face: The Story of the Schappell Twins, A&E Home Video, 2002.
Hidden Wholeness Parker Palmer
21. Center for Courage & Renewal, http://www.couragerenewal.org/parker/.
22. Zoe Mackey, “The View From the Brink: Parker Palmer on Grace, Gravity, and Getting Old,” BK Connection, June 25, 2018, https://ideas.bkconnection.com/the-view-from-the-brink-parker-palmer-on-grace-gravity-and-getting-old (accessed June 26, 2018).
23. Alicia Von Stamwitz, “If Only We Would Listen,” Sun, November 2012, https://thesunmagazine.org/issues/443/if-only-we-would-listen (accessed July 31, 2018).
24. Parker J. Palmer, “Welcome to the Human Race,” Daily Good, http://www.dailygood.org/story/1762/welcome-to-the-human-race/ (accessed July 31, 2018).
25. Parker J. Palmer, A Hidden Wholeness: The Journey Toward an Undivided Life (San Francisco, CA: Jossey-Bass, 2004).
26. Palmer, “Welcome to the Human Race.”
27. Von Stamwitz, “If Only We Would Listen.”
28. Von Stamwitz.
29. Parker J. Palmer, Let Your Life Speak: Listening for the Voice of Vocation (San Francisco, CA: Jossey-Bass, 1999).
Humanity Passport Naoki Higashida with David Mitchell
30. Naoki Higashida, Fall Down 7 Times Get Up 8: A Young Man’s Voice from the Silence of Autism (New York: Knopf, 2017).
31. David Mitchell, “David Mitchell: Learning to live with my son’s autism,” Guardian, June 29, 2013, https://www.theguardian.com/society/2013/jun/29/david-mitchell-my-sons-autism?CMP=twt_fbo (accessed June 23, 2018).
32. Mike Doherty, “David Mitchell on translating—and learning from—Naoki Higashida,” Maclean’s, July 13, 2017, https://www.macleans.ca/society/david-mitchell-on-translating-and-learning-from-naoki-higashida/ (accessed July 14, 2017).
33. Nate Hopper, “My Autism Allows Me to See the World in a Different Way,” Time, July 13, 2017, https://time.com/4856602/autism-nonverbal-book-naoki-higashida/.
34. Naoki Higashida, The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism (Toronto, Canada: Vintage Canada, 2016).
35. Higashida, The Reason I Jump.
A Culture with No Boundaries Carey, Shelly, and Zoe Elverum
36. CBC Radio, “An unusual family finds joy, connection and love in a remote Inuit community,” “The Sunday Edition,” September 10, 2017, https://www.cbc.ca/radio/thesundayedition/the-sunday-edition-september-10-2017-1.4280530/an-unusual-family-finds-joy-connection-and-love-in-a-remote-inuit-community-1.4280762 (accessed September 18, 2017).
37. Jennifer Kingsley, “Meet the Elverums,” Meet the North, September 17, 2017, https://www.meetthenorth.org/2017/09/meet-the-elverums/ (accessed September 18, 2017).
38. Kingsley, “Meet the Elverums.”
39. Kingsley.
40. Kingsley.
Lesson 2: Funny Things Happen on the Way to the Future
What David Roche Taught Me
1. David Roche, The Church of 80% Sincerity (New York: Penguin, 2012).
2. David Roche, “The Metaphor of Facial Difference,” Well of Light, https://www.welloflight.com/the-metaphor-of-facial-difference.html (accessed January 15, 2018).
3. David Roche, recollection in a personal appearance, January 27, 2014.
Funny Things Happen on the Way to the Future Michael J. Fox
4. Brian D. Johnson, “Michael J. Fox: Back with a future,” Maclean’s, October 6, 2013, https://www.macleans.ca/culture/back-with-a-future/ (accessed September 26, 2018).
5. Brian Hiatt, “Michael J. Fox: The Toughest Man on TV,” Rolling Stone, September 26, 2013, https://www.rollingstone.com/tv/tv-news/michael-j-fox-the-toughest-man-on-tv-195820/ (accessed September 26, 2018).
6. Ian Youngs, “Jodie Foster and Michael J. Fox lead anti-trump protest,” BBC, February 25, 2017, https://www.bbc.com/news/entertainment-arts-39088450 (accessed September 26, 2018).
7. Marlo Thomas, “The Givers: What Inspires Michael J. Fox? A Very Personal Interview,” HuffPost, April 5, 2012, https://www.huffpost.com/entry/michael-j-fox-interview_b_1402876.
8. Andrew Corsello, “The Kid Is Alright,” AARP magazine, March 22, 2017, https://www.aarp.org/entertainment/style-trends/info-2017/michael-j-fox-aarp-magazine.html.
Laughing Matters Maysoon Zayid
9. Maysoon Zayid, “I Got 99 Problems . . . Palsy Is Just One,” TED Talk, December 2013.
10. Zayid, “I Got 99 Problems . . . Palsy Is Just One.”
11. Xiaorong Chen, “We are not making history, we are changing the story,” UNESCO Courier, https://en.unesco.org/courier/lrsl-lrqmy/maysoon-zayid-we-are-not-making-history-we-are-changing-story (accessed June 29, 2019).
12. Bligh Voth, “Maysoon,” Nasty Women of New York, https://www.nastywomenofnewyork.com/nwny-1/2018/4/13/maysoon (accessed June 29, 2019).
13. Ellen McGirt, “Can This Disabled, Muslim, Female Comic Save the RNC? She Sure Is Trying,” Fortune, July 20, 2016, http://fortune.com/2016/07/20/maysoon-zavid-rnc-muslim-comic/ (accessed June 29, 2019).
14. McGirt, “Can This Disabled, Muslim, Female Comic Save the RNC?”
15. Zayid, “I Got 99 Problems . . . Palsy Is Just One.”
If at Birth You Don’t Succeed Zach Anner
16. Zach Anner, If at Birth You Don’t Succeed: My Adventures with Disaster and Destiny (New York: Henry Holt & Co., 2016).
17. Zach Anner, “Top 10 Things I Wish People Knew about Cerebral Palsy,” YouTube, September 17, 2016, https://www.youtube.com/watch?v=w-Sh8ZuGbMI (accessed June 2, 2019).
18. Zach Anner, “Pullups and Pick-me-ups—Workout Wednesday,” YouTube, Zach Anner, https://www.youtube.com/watch?v=JqEQ4SSdZAs&list=PLKid_CNBQaE7a_lDb6HCRJe1eSlRrQ9KW (accessed June 2, 2019).
19. @Zachanner.
Changing the World One Laugh at a Time Nidhi Goyal
20. Nidhi Goyal, “Changing the World One Laugh at a Time,” Comedy for Disability Rights, TEDxHRCollege, April 13, 2018, https://www.youtube.com/watch?v=bNdVlwFptfU (accessed April 10, 2019).
21. Nidhi Goyal, “In the words of Nidhi Goyal: “These spaces are for everyone,” UN Women, June 13, 2018, http://www.unwomen.org/en/news/stories/2018/6/in-the-words-of-nidhi-goyal (accessed April 10, 2019).
22. Centre for Social Research, “Gender in Indian Standup Comedy—Nidhi Goyal,” Gender Matters, January 23, 2018, http://gendermatters.in/2018/01/nidhi-goyal-gender-in-indian-standup-comedy/.
23. Goyal, “Changing the World One Laugh at a Time.”
24. Goyal.
25. UN India, “8 Women, 8 Incredible Stories,” May 11, 2017, https://un-india.exposure.co/8-women-8-incredible-stories?embed=true (accessed April 10, 2019).
Don’t Worry, He Won’t Get Far on Foot John Callahan
26. Bruce Weber, “John Callahan, Cartoonist, Dies at 59,” New York Times, July 28, 2010, https://www.nytimes.com/2010/07/28/arts/design/28callahan.html accessed June 29, 2019).
27. Robert Chalmers, “Prophet of bad taste: John Callahan was a comic genius who left no taboo unbroken,” August 13, 2010, Independent, https://www.independent.co.uk/arts-entertainment/comedy/features/prophet-of-bad-taste-john-callahan-was-a-comic-genius-who-left-no-taboo-unbroken-2051210.html (accessed June 29, 2019).
Get Down Moves Lauren Potter
28. Fandom, “Lauren Potter,” https://glee.fandom.com/wiki/Lauren_Potter (accessed February 28, 2018).
29. Fandom, “Lauren Potter.”
30. Lauren Potter, “I’m Taking a Stand to Make My Difference in the World,” HuffPost, June 2, 2014, https://www.huffpost.com/entry/im-taking-a-stand-to-make_b_5431373 (accessed February 28, 2018).
31. Potter, “I’m Taking a Stand to Make My Difference in the World.”
32. Caitlin Gallagher, “Glee’s Lauren Potter Has a Message for Hollywood on Hiring People with Down Syndrome: ‘You Won’t Be Disappointed,’” Popsugar, October 19, 2018, https://www.popsugar.com/smart-living/Lauren-PotterInterview-About-Acting-Down-Syndrome-45290908 (accessed February 28, 2019).
Smart Ass Empire Mike Ervin
33. Mike Ervin, “The Birth of a Smart Ass Empire,” Smart Ass Cripple, http://smartasscripple.blogspot.com/2010/10/birth-of-smart-ass-empire.html (accessed December 8, 2018).
34. Ervin, “The Birth of a Smart Ass Empire.”
35. Roger Ebert, “This Cripple is a Smart Ass,” Roger Ebert’s Journal, https://www.rogerebert.com/rogers-journal/this-cripple-is-a-smart-ass (accessed December 8, 2018).
36. Mike Ervin, “Rent-A-Cripple,” Smart Ass Cripple, http://smartasscripple.blogspot.com/2012/01/rent-cripple.html (accessed December 8, 2018).
Funny, You Don’t Look Crazy Victoria Maxwell
37. Karen Barrow, “A Patient Takes the Stage,” New York Times, https://www.nytimes.com/interactive/2017/well/patient-voices-bipolar.html#victoria (accessed May 30, 2019).
38. Victoria Maxwell, “A Brief History of a Lucky Woman,” Psychology Today, February 12, 2019, https://www.psychologytoday.com/ca/blog/crazy-life/201902/brief-history-lucky-woman (accessed May 30, 2019).
39. Victoria Maxwell, “Rules for Making Fun of Mental Illness,” Psychology Today, February 21, 2018, https://www.psychologytoday.com/us/blog/crazy-life/201802/rules-making-fun-mental-illness (accessed May 30, 2019).
40. Maxwell, “Rules for Making Fun of Mental Illness” (used with permission).
Did You Know . . .
41. Joelle Smith, “Estimated 98% of World’s Banking Leaders Pre-Collapse Are Non-Autistic,” Evil Autie, April 5, 2013, https://evilautie.org/2013/04/05/estimated-98-of-worlds-banking-leaders-pre-collapse-are-non-autistic/?fbclid=IwAR0EDQ6PUuWJHPDQTbiMBsb4NW84gJZ0v63c2Yh- (accessed June 29, 2019).
42. Susan Devaney, “Nanette’s Hannah Gadsby reveals how autism diagnosis transformed her,” Stylist, https://www.stylist.co.uk/people/nanette-hannah-gadsby-autism-tv-comedy-netflix/218114 (accessed June 29, 2019).
Lesson 3: Label Jars, Not People
What Cradle Heaven Taught Me
1. Facility name and circumstances have been changed.
The Mismeasure of Man Stephen Jay Gould
2. Henry Herbert Goddard, The Kallikak Family: A Study in the Heredity of Feeble-Mindedness (London, England: Forgotten Books, 2012; originally published in 1913).
3. Stephen Jay Gould, The Mismeasure of Man (New York: W. W. Norton, 1996).
4. Stephen Jay Gould, Full House: The Spread of Excellence from Plato to Darwin (Cambridge, MA: Belknap Press, 2011).
5. Daniel S. Levy and Stephen Jay Gould, “Evolution, Extinction and the Movies,” Time, May 14, 1990.
The Power of Not Fitting In Temple Grandin
6. Temple Grandin, Temple Grandin’s Guide to Working with Farm Animals: Safe, Humane Livestock Handling Practices for the Small Farm (North Adams, MA: Storey Publishing, 2017).
7. Neal Conan, “Temple Grandin: A Life Devoted to Animals,” NPR, January 27, 2010, https://www.npr.org/templates/story/story.php?storyId=123028845 (accessed May 3, 2019).
8. Temple Grandin, “The World Needs All Kinds of Minds,” TED Talk.
Dethroning Stereotypes Peter Dinklage
9. James Hibberd, “Peter Dinklage talks ‘Game of Thrones’ at Comic-Con,” Entertainment, July 21, 2011, https://ew.com/article/2011/07/21/peter-dinklage-game-of-thrones/ (accessed June 1, 2018).
10. Sarah Luoma, “Peter Dinklage on His First Animated Movie, ‘Ice Age 4’: “I felt like I was doing everything wrong,” Daily Actor, July 18, 2012, https://www.dailyactor.com/film/peter-dinklage-ice-age-4/ (accessed June 1, 2018).
11. Gael Fashingbauer, “George R. R. Martin tells voters how to get rid of a bad king,” CNET, https://www.cnet.com/news/george-r-r-martin-tells-voters-how-to-get-rid-of-a-bad-king/ (accessed June 2, 2018).
12. Eric Spitznagel, “Peter Dinklage’s Porn Name Is, Not Surprisingly, Peter Dinklage,” Vanity Fair, January 20, 2011, https://www.vanityfair.com/culture/2011/01/peter-dinklages-porn-name-is-not-surprisingly-peter-dinklage (accessed June 2, 2018).
Identity Complications Cristina Hartmann
13. Cristina Hartmann, “About,” https://cristinahartmann.com/about (accessed February 13, 2019).
14. Cristina Hartmann, “Reading Between the Lines I Couldn’t See,” Medium, November 2, 2018, https://medium.com/s/story/the-library-my-savior-d853f2b8ec4f (accessed February 13, 2019).
15. Hartmann, “Reading Between the Lines I Couldn’t See.”
16. Cristina Hartmann, “The Complications of Growing Up Bionic,” Medium, February 11, 2018, https://medium.com/s/for-the-record/neither-a-miracle-nor-a-tragedy-the-complications-of-growing-up-bionic-4c78a4c7d722.
17. Hartmann, “Reading Between the Lines I Couldn’t See.”
The R-Word Timothy Shriver
18. Manuel Roig-Franzia, “Special O chair urges respect for intellectually disabled,” Daily Herald, March 28, 2010, https://www.heraldextra.com/lifestyles/special-olympics-chair-urges-respect-for-intellectually-disabled/article_a07dfe13-7f0b-57a7-b941-79d08e618a67.html (accessed June 14, 2019).
19. Roig-Franzia, “Special O chair urges respect for intellectually disabled.”
20. Timothy Shriver, “The bigotry behind the word ‘retard,’” Washington Post, February 15, 2010, http://www.washingtonpost.com/wp-dyn/content/article/2010/02/14/AR2010021402893.html (accessed June 14, 2019).
21. Shriver, “The bigotry behind the word ‘retard.’”
22. Timothy Shriver, “Why Tropic Thunder shouldn’t be seen,” CNN, August 13, 2008, http://www.cnn.com/2008/SHOWBIZ/Movies/08/12/shriver.thunder/ (accessed June 14, 2019).
Breaking the Silence Allie Cashel
23. Amanda Crommett Photography, “Suffering the Silence: Portraits of Chronic Illness,” Suffering the Silence, https://www.sufferingthesilence.com/portraits-of-chronic-illness (accessed May 2, 2019).
24. Anna Gragert, “Powerful Portraits of People Revealing Their Invisible Illnesses,” My Modern Met, September 1, 2015, https://mymodernmet.com/cashel-lupinacci-suffering-the-silence/ (accessed May 2, 2019).
25. Mary Beth Pfeiffer, Lyme: The First Epidemic of Climate Change (Washington, DC: Island Press, 2018).
26. Allie Cashel, “Becoming Visible,” North Atlantic Books, May 18, 2016, https://www.northatlanticbooks.com/blog/becoming-visible/ (accessed May 2, 2019).
Label Jars, Not People Edith Sheffer
27. CBC Radio, “A Nazi in all but name: Author argues Asperger’s syndrome should be renamed,” “The Current,” August 13, 2018, http://www.cbc.ca/radio/thecurrent/the-current-for-august-14-2018-1.4783610/a-nazi-in-all-but-name-author-argues-asperger-s-syndrome-should-be-renamed-1.4783614 (accessed September 5, 2018).
28. Edith Sheffer, Asperger’s Children: The Origins of Autism in Nazi Vienna (New York: W. W. Norton, 2018).
29. Sheffer, Asperger’s Children.
30. CBC, “A Nazi in all but name.”
31. Sheffer, Asperger’s Children.
Branding Disability Albert Lasker
32. Terry O’Reilly, “The Most Interesting Adman in the World: The Story of Albert Lasker,” CBC Radio, “Under the Influence,” August 31, 2017, https://www.cbc.ca/radio/undertheinfluence/summer-series-the-most-interesting-adman-in-the-world-the-story-of-albert-lasker-1.4120833 (accessed March 2, 2019).
33. O’Reilly, “The Most Interesting Adman in the World.”
34. Brittney McNamara, “Barbie Is Now in a Wheelchair and Has a Prosthetic Leg,” Teen Vogue, February 11, 2019, https://www.teenvogue.com/story/barbie-wheelchair-prosthetic-leg? (accessed June 3, 2019).
35. Anna Malec, “National Geographic’s new photo campaign highlights people with Down syndrome,” Aleteia, November 23, 2018, https://aleteia.org/2018/11/23/national-geographics-new-photo-campaign-highlights-people-with-down-syndrome/ (accessed June 3, 2019).
36. Terri Peters, “The first Gerber baby with Down syndrome will steal your heart,” Today, February 7, 2018, https://www.today.com/parents/2018-gerber-baby-first-gerber-baby-down-syndrome-t122258 (accessed June 3, 2019).
Lesson 4: There Ain’t No Cure for Love
What Phil and Wendy Allen Taught Me
1. In memory of Phil Allen (1927–2017).
Hot, Wet, and Shaking Kaleigh Trace
2. Kaleigh Trace, “Kaleigh Trace—I Don’t Feel Bad about This At All,” https://vimeo.com/49564647.
3. CBC Radio, “Sex educator shares her path to radical self-acceptance,” “Tapestry,” July 29, 2018, https://www.cbc.ca/radio/tapestry/rethinking-disability-1.4726131/sex-educator-shares-her-path-to-radical-self-acceptance-1.4726329 (accessed October 4, 2019).
4. CBC Radio, “Sex educator shares her path to radical self-acceptance.”
5. Invisible Publishing, Hot, Wet, and Shaking: How I Learned to Talk About Sex, https://invisiblepublishing.com/product/hot-wet-and-shaking/.
6. “Real Sex Advice from Kaleigh Trace,” Sex with Dr. Jess, November 7, 2017, https://www.sexwithdrjess.com/2017/11/real-sex-advice-from-kaleigh-trace/ (accessed October 4, 2019).
There Ain’t No Cure for Love Leonard Cohen
7. Mireille Silcott, “A Happy Man,” Saturday Night, September 15, 2001, http://www.webheights.net/10newsongs/press/satnite.htm (accessed April 8, 2018).
8. Silcott, “A Happy Man.”
9. David Remnick, “Leonard Cohen Makes It Darker,” New Yorker, October 10, 2016, https://www.newyorker.com/magazine/2016/10/17/leonard-cohen-makes-it-darker (accessed April 8, 2018).
10. LeonardCohenForums, “Ten years . . . ,” https://www.leonardcohenforum.com/viewtopic.php?t=15430 (accessed January 7, 2018).
11. Silcott, “A Happy Man.”
12. Soutik Biswas, “When the light got in for Leonard Cohen,” BBC News, November 16, 2016, https://www.bbc.com/news/world-asia-india-37971848 (accessed April 9, 2018).
Love at Second Sight Marlena Blavin
13. Paul Liberatore, “Facing challenges with love,” Marin Independent Journal, March 4, 2008, https://www.marinij.com/2008/03/04/facing-challenges-with-love/ (accessed April 17, 2019).
14. “Love at Second Sight,” interview, Vimeo, https://vimeo.com/65760126 (accessed April 17, 2019).
15. “Love at Second Sight,” Vimeo.
16. Love at Second Sight, https://www.loveatsecondsight.org/.
17. Liberatore, “Facing challenges with love.”
18. Nic Askew, SoulBiographies, “The Second Glance,” http://nicaskew.com/collection/the-second-glance/ (accessed June 25, 2017).
Sex and the Gimpy Girl Nancy Mairs
19. Nancy Mairs, “Sex and the Gimpy Girl,” River Teeth 10, no. 1–2 (Fall 2008/Spring 2009).
20. Nancy Mairs, Waist-High in the World: A Life Among the Nondisabled (Boston, MA: Beacon Press, 1997).
21. Mairs, Waist-High in the World
22. Mairs.
23. Nancy Mairs, Carnal Acts: Essays (New York: Perennial, 1991).
Crossing Half of China to Sleep with You Yu Xiuhua
24. Yu Xiuhua, “Two Poems,” World Literature Today, https://www.worldliteraturetoday.org/2018/july/two-poems-yu-xiuhua (accessed November 15, 2018).
25. Xu Xiao, “Two Poets’ War of Words Shows China’s Yawning Generation Gap,” Sixth Tone, February 8, 2018, http://www.sixthtone.com/news/1001688/two-poets-war-of-words-shows-chinas-yawning-generation-gap# (accessed November 15, 2018).
26. Kiki Zhao, “A Chinese Poet’s Unusual Path From Isolated Farm Life to Celebrity,” New York Times, August 18, 2017, https://www.nytimes.com/2017/08/18/world/asia/china-poet-yu-xiuhua.html (accessed November 15, 2018).
27. Jennifer Robinson, POV: Still Tomorrow, KPBS, July 24, 2018, https://www.kpbs.org/news/2018/jul/24/pov-still-tomorrow/ (accessed November 16, 2018).
Fifty Shades of Scarlet Mik Scarlet
28. Mik Scarlet, “The man taught to have sex by lesbians,” BBC News, https://www.bbc.com/news/disability-39351352 (accessed May 6, 2019).
29. Mik Scarlet and Emily Yates, Welcome to the Love Lounge at Enhance the UK, Real Talk, http://real-talk.org/the-love-lounge-a-web-based-advice-forum-on-sex-love-and-disability/ (accessed August 12, 2018).
30. Scope, “Scope’s Romance Classics: Mik Scarlet Has a One Track Mind,” February 11, 2016, https://blog.scope.org.uk/2016/02/11/scopes-romance-classics-mik-scarlet-has-a-one-track-mind/ (accessed August 12, 2018).
31. Katharine Quarmby, “What Disabled People Can Teach Us About Sex—and Why We Should Listen,” Gizmodo, March 17, 2015, https://io9.gizmodo.com/what-disabled-people-can-teach-us-about-sex-and-why-w-1691916261 (accessed August 12, 2018).
32. Quarmby, “What Disabled People Can Teach Us About Sex.”
Things Disabled People Know about Parenting Ing Wong-Ward
33. Ing Wong-Ward, Twitter, January 20, 2019, https://twitter.com/ingwongward/status/1087186892037197824.
34. Disability Visibility Project, “DVP Interview: Ing Wong-Ward and Alice Wong,” December 1, 2018, https://disabilityvisibilityproject.com/2018/12/01/dvp-interview-ing-wong-ward-and-alice-wong/ (accessed January 25, 2019).
35. Anna Maria Tremonti, “‘A compromised life is worth living’: Why Ing Wong-Ward won’t choose medically assisted death,” CBC Radio, “The Current,” May 3, 2018, https://www.cbc.ca/radio/thecurrent/the-current-for-may-3-2018-1.4645398/a-compromised-life-is-worth-living-why-ing-wong-ward-won-t-choose-medically-assisted-death-1.4645437 (accessed January 25, 2019).
In Sickness and in Health Ben Mattlin
36. Ben Mattlin, In Sickness and in Health: Love, Disability, and a Quest to Understand the Perils and Pleasures of Interabled Romance (Boston, MA: Beacon Press, 2018).
37. Lisa Mullins, “Why a Wheelchair Cannot Come Between Love,” WBUR, “Here & Now,” April 20, 2018, https://www.wbur.org/hereandnow/2018/04/20/ben-mattlin-in-sickness-in-health (accessed June 10, 2019).
38. Now This, “Author Ben Matlin Gives an Intimate Take on Love in an Interabled Relationship,” https://www.facebook.com/NowThisNews/videos/197501157868703/ (accessed June 10, 2019).
Lesson 5: All Means All
What Ted and Josh Kuntz Taught Me
1. In memory of Josh Kuntz (1984–2017).
The Elephant in the Room Caroline Casey
2. Caroline Casey, “Looking Past Limits,” TED Talk, April 8, 2011, https://www.youtube.com/watch?v=YyBk55G7Keo.
3. Casey, “Looking Past Limits.”
4. Denise Brodey, “This Woman Is Making Disability Inclusion a Leadership Issue,” Forbes, https://www.forbes.com/sites/denisebrodey/2019/01/29/this-woman-is-making-disability-inclusion-a-leadership-issue/#7b90dcf21eac (accessed March 17, 2019).
5. Business Disability Forum, “Disability absent from leadership strategy in majority of global businesses,” January 14, 2019, https://businessdisabilityforum.org.uk/media-centre/news/disability-absent-from-leadership-strategy/.
6. Caroline Casey, “We need to talk about disability inclusion,” Comment Central, June 26, 2019, http://commentcentral.co.uk/we-need-to-talk-about-disability-inclusion/.
7. The Valuable 500, https://www.thevaluable500.com/.
8. The Valuable 500.
9. AdForum, The Valuable 500—Diversish, https://www.adforum.com/award-organization/6650183/showcase/2019/ad/34590323.
10. The Valuable 500.
Krip-Hop Nation Luca Patuelli
11. T’Cha Dunlevy, “For breakdance crew ILL-Abilities, physical challenges aren’t crutches,” February 14, 2019, Montreal Gazette, https://montrealgazette.com/entertainment/local-arts/skys-the-limit-for-ill-abilities-breakdance-crew (accessed June 1, 2019).
12. Colleen Connors, “‘It’s incredible’: World-renowned b-boy Lazylegz breakdances in N.L.,” CBC, https://www.cbc.ca/news/canada/newfoundland-labrador/it-s-incredible-world-renowned-b-boy-lazylegz-breakdances-in-n-l-1.4839420 (accessed June 1, 2019).
13. Judith Mackrell, “ILL-Abilities: The b-boy super crew taking on the able-bodied,” Guardian, May 2, 2013, https://www.theguardian.com/stage/2013/may/02/ill-abilities-dance-breakin-convention (accessed June 1, 2019).
14. Mackrell, “ILL-Abilities.”
15. Dunlevy, “For breakdance crew ILL-Abilities, physical challenges aren’t crutches.”
16. Dunlevy.
17. Luca “Lazylegz” Patuelli, “Life is a dance whether we know it or not,” Creative Momentum, April 22, 2015, https://www.creativemoment.im/dancedaymessage2015/ (accessed June 1, 2019).
18. Krip-Hop Nation, http://kriphopnation.com/.
Runway to the World Aaron Philip
19. @aaronphilipxo, Twitter, November 23, 2017, https://twitter.com/aaronphilipxo/status/933901376278626304?lang=en.
20. Tyler Blint-Welsh, “A Path to the Runway, Paved With Hardship,” New York Times, August 31, 2018, https://www.nytimes.com/2018/08/31/us/cerebral-palsy-transgender-fashion-model.html (accessed January 5, 2019).
21. Aaron Philip, “I’m a Black, Trans, Disabled Model—and I just Got Signed to a Major Agency,” them., September 4, 2018, https://www.them.us/story/aaron-philip-signed-to-modeling-agency (accessed January 5, 2019).
22. Philip, “I’m a Black, Trans, Disabled Model.”
23. Aaron Barksdale, “Trans Disabled Teen Model Aaron Philip Is the Future of Fashion,” Vice, October 10, 2018, https://www.vice.com/en_ca/article/j53kp8/trans-disabled-teen-model-aaron-philip-fashion.
24. D’Arcee Neal, “Meet the Disabled Trans Model Who’s Here to DOMINATE the Fashion World,” them., May 22, 2018, https://www.them.us/story/aaron-philip-fashion-and-disability (accessed January 5, 2019).
Unleash Different Rich Donovan
25. “The Walrus Talks Inclusion,” May 7, 2019.
26. Rich Donovan, “A fresh approach to disability employment,” BBC, “Ouch!” http://www.bbc.co.uk/ouch/opinion/disability-employment.shtml (accessed June 21, 2019).
27. “The Walrus Talks Inclusion.”
28. “The Walrus Talks Inclusion.”
Navigating Privilege and Power Deborah Dagit
29. Deborah Dagit, keynote speech, YouTube, April 8, 2015, https://www.youtube.com/watch?v=nnrqdB7zKLM.
30. Dagit, keynote speech.
31. Hector Perez, “Inspiring Story: Deb Dagit a Truly Inclusion Hero,” Medium, December 3, 2018, https://medium.com/equapply/inspiring-story-deb-dagit-a-truly-inclusion-hero-c0b142ea3ddc (accessed April 24, 2019).
32. Dagit, keynote speech.
Sharing Lives The Village of Geel and Alex Fox
33. Karin Wells, “Psychiatric community care: Belgian town sets gold standard,” CBC News, http://www.cbc.ca/news/world/psychiatric-community-care-belgian-town-sets-gold-standard-1.2557698 (accessed December 18, 2018).
34. WGBH, “Ah, My Brother” transcript, “Morning Stories,” http://streams.wgbh.org/online/morn/transcripts/MSPC20071130.pdf (accessed December 18, 2018).
35. Alex Fox, A New Health and Care System: Escaping the Invisible Asylum (Bristol, UK: Policy Press, 2018).
An Authentic Doctor David Renaud
36. Stephen Letnes, “Able Artist Profile: David Renaud, MD,” Able Artist Foundation News, March 12, 2018, https://ableartist.org/article/able-artist-profile-david-renaud-md (accessed January 15, 2019).
37. Letnes, “Able Artist Profile: David Renaud, MD.”
38. Tara Bitran, “‘Good Doctor’ Writer David Renaud Aims at ‘Authentic’ Depictions of People with Disabilities,” Variety, September 23, 2018, https://variety.com/2018/tv/features/david-renaud-good-doctor-disability-1202910405/ (accessed January 15, 2919).
All Means All Marsha Forest and Jack Pearpoint
39. Jack Pearpoint, personal correspondence with the author, January 2019.
40. Jack Pearpoint, personal conversation with the author, October 1, 2018.
Lesson 6: Adversity Is an Opportunity
What Sam Sullivan Taught Me
1. Sam Sullivan: Life in a Wheel, Explore Films, 2009.
Mothering On Christa Couture
2. CBC Radio, “Christa Couture on love, loss and the power of music to hold things together,” “Unreserved,” February 19, 2017, https://www.cbc.ca/radio/unreserved/christa-couture-on-love-loss-and-the-power-of-music-to-hold-things-together-1.3687546 (accessed November 19, 2018).
3. Louise Kinross, “Christa Couture sees beauty in resilience,” Bloom, April 18, 2018, http://bloom-parentingkidswithdisabilities.blogspot.com/2018/04/christa-couture-sees-beauty-in.html (accessed November 19, 2018).
4. Christa Couture, “That Time I Went Viral—for My Pregnancy Photos,” Christa Couture, June 27, 2018, http://christacouture.com/that-time-i-went-viral-for-my-pregnancy-photos/ (accessed November 19, 2018).
5. Christa Couture, “I don’t just accept my disability—I can celebrate it,” CBC Radio, “Tapestry,” August 12, 2018, https://www.cbc.ca/radio/tapestry/i-don-t-just-accept-my-disability-i-can-celebrate-it-1.4726383 (accessed November 19, 2018).
6. Christa Couture, “The M Word: Ever Since the End,” Christa Couture, May 4, 2016, http://picklemethis.com/2016/05/01/the-m-word-ever-since-the-end-by-christa-couture/ (accessed November 19, 2018).
Breathing Love into Zika the Guerreira Mothers of Brazil
7. Katherine Jinyi Li, “Brazil’s Zika mothers are speaking out,” Seattle Globalist, June 28, 2016, https://www.seattleglobalist.com/2016/06/28/brazil-zika-mothers-speaking-out/53007.
8. William Kremer, “Zika Love Stories,” BBC, https://www.bbc.co.uk/news/resources/idt-sh/zika_love_stories (accessed March 28, 2019).
9. Poonam Daryani, “Zika’s Never-Ending Emergency,” Pulitzer Center, February 26, 2018, https://pulitzercenter.org/reporting/zikas-never-ending-emergency.
Radical Optimist Helen Keller
10. Barbara Bindley, “Helen Keller—Why I Became an IWW,” Industrial Workers of the World, originally published in the New York Tribune, January 15, 1916, https://www.iww.org/history/library/HKeller/why_I_became_an_IWW (accessed June 20, 2019).
11. Biography, “Helen Keller,” https://www.biography.com/activist/helen-keller (accessed June 20, 2019).
12. Helen Keller, Helen Keller’s Journal: 1936–1937 (New York: Doubleday, Doran & Company, 1938).
13. Helen Keller, The Story of My Life (New York: W. W. Norton, 2003).
Adversity Is an Opportunity Aimee Mullins
14. Aimee Mullins, “The Opportunity of Adversity,” TED Talk, October 2009, https://www.ted.com/talks/aimee_mullins_the_opportunity_of_adversity?language=en.
15. Mullins, “The Opportunity of Adversity.”
16. Mullins.
Better and Darker Angels Abraham Lincoln
17. Joshua Wolf Shenk, “Lincoln’s Great Depression,” Atlantic, October 2005.
18. Shenk, “Lincoln’s Great Depression.”
19. Abraham Lincoln, Second Inaugural Address.
20. Lincoln, First Inaugural Address.
Image Maker Franklin Delano Roosevelt
21. fdr4freedoms, “I. Becoming a Leader: FDR Before the Presidency, 1882–1933,” http://fdr4freedoms.org/becoming-a-leader/ (accessed February 24, 2018).
22. Blanche Wiesen Cooke, Eleanor Roosevelt: Volume 2, The Defining Years, 1933–1938 (New York: Penguin, 2000).
23. Naomi Klein, “A Message from the Future with Alexandria Ocasio-Cortez,” Intercept, April 17, 2019, https://theintercept.com/2019/04/17/green-new-deal-short-film-alexandria-ocasio-cortez/ (accessed February 24, 2018).
24. Curtis Roosevelt, “FDR: A Giant Despite His Disability,” New York Times, August 5, 1998, https://www.nytimes.com/1998/08/05/opinion/IHT-fdr-a-giant-despite-his-disability.html (accessed February 24, 2018).
25. Robert Graham, “Franklin Delano Roosevelt Memorial,” http://www.robertgraham-artist.com/civic_monuments/fdr_memorial.html (accessed February 24, 2018).
Breaking Ground Pearl S. Buck
26. Stanley Finger and Shawn E. Christ, “Pearl S. Buck and Phenylketonuria (PKU),” Journal of the History of the Neurosciences 13, issue 1 (2004): 44–57.
27. Finger and Christ, “Pearl S. Buck and Phenylketonuria.”
The Dark Side of the Game Tim Green
28. Brit McCandless Farmer, “Tim Green on His Emotional 60 Minutes Interview,” 60 Minutes Overtime, November 18, 2018, https://www.cbsnews.com/news/tim-green-als-emotional-60-minutes-interview/ (accessed February 3, 2019).
29. Tom Goldman, “Former NFL Player Tim Green Has a New Opponent—ALS,” NPR, Morning Edition, December 12, 2018, https://www.npr.org/2018/12/12/675696565/former-nfl-player-tim-green-has-a-new-opponent-als (accessed February 3, 2019).
30. Goldman, “Former NFL Player Tim Green Has a New Opponent—ALS.”
31. Goldman.
32. Steve Kroft, “Tim Green: Coping with the ALS He Thinks Was Caused by the Game He Loves,” 60 Minutes, https://www.cbsnews.com/news/tim-green-coping-with-the-als-he-thinks-was-caused-nfl-atlanta-falcons-syracuse-football-60-minutes/ (accessed February 3, 2019).
Lesson 7: Art Blooms at the Edges
What Geoff McMurchy Taught Me
1. In memory of Geoff McMurchy (1955–2015).
Art Blooms at the Edges Yayoi Kusama
2. Yayoi Kusama, Infinity Net: The Autobiography of Yayoi Kusama (Chicago, IL: University of Chicago Press, 2012).
3. Kusama, Infinity Net.
4. Alexandra Munroe, “Yayoi Kusama at 90: How the ‘undiscovered genius’ became an international sensation,” CNN, “Style,” March 22, 2019, https://www.cnn.com/style/article/yayoi-kusama-artist/index.html (accessed June 5, 2019).
5. Priscilla Frank, “Selfie Obliteration: How Yayoi Kusama Invented the Photo-Friendly Art Show,” HuffPost, October 21, 2015, https://www.huffingtonpost.ca/entry/yayoi-kusama-selfies_n_562687ede4b08589ef493823 (accessed May 6, 2017).
6. Heather Lenz, director, Kusama, Infinity, documentary, 2018.
7. Lenz, Kusama, Infinity.
8. Lenz.
9. Ann Binlot, “Yayoi Kusama Contemplates Life and Death in Technicolor,” Daily Beast, July 11, 2017, https://www.thedailybeast.com/yayoi-kusama-contemplates-life-and-death-in-technicolor (accessed June 27, 2019).
The Heart of the Matter Itzhak Perlman
10. Itzhak Perlman, “On Practicing,” http://www.itzhakperlman.com/video/ (accessed May 31, 2018).
11. Alison Chernick, director, Itzhak, documentary, 2018, https://www.itzhakthefilm.com/.
12. Chernick, Itzhak.
13. Chernick.
14. Chernick.
15. Jack Riemer, “Perlman makes his music the hard way,” Houston Chronicle, February 10, 2001, https://www.chron.com/life/houston-belief/article/Perlman-makes-his-music-the-hard-way-2009719.php (accessed May 31, 2018).
Black Beauty Anna Sewell
16. Anna Sewell, Black Beauty: The Autobiography of a Horse (New York: Penguin Random House, 2000).
17. Sewell, Black Beauty.
The Key of Life Stevie Wonder
18. Paul Lester, “I never thought of being blind and black as a disadvantage,” Guardian, August 30, 2012, https://www.theguardian.com/music/2012/aug/30/stevie-wonder-blind-black-disadvantage (accessed August 6, 2017).
19. Colleen Curry, “Stevie Wonder’s Incredible History of Creating Change—on Stage and Off,” Global Citizen, September 21, 2017, https://www.globalcitizen.org/en/content/stevie-wonders-history-of-creating-change-on-stage/ (accessed November 4, 2018).
20. Robert B. Black, “How Stevie Wonder Helped Create Martin Luther King Day,” BlackDoctor.org, https://blackdoctor.org/477855/how-stevie-wonder-help-create-dr-king-holiday/ (accessed November 4, 2018).
21. Ambassadors for Peace, “Stevie Wonder, Ambassador for Peace,” http://ambassadorsforpeace.info/stevie-wonder-messenger-for-peace/ (accessed November 4, 2018).
A Chair in the Sky Charles Mingus with Joni Mitchell
22. Nat Hentoff, “Final Chorus: What About Mingus?” JazzTimes, December 1, 2008, https://jazztimes.com/features/columns/what-about-mingus/ (accessed June 2, 2019).
23. Leonard Feather, “Joni Mitchell Makes Mingus Sing,” Joni Mitchell, originally published in DownBeat, September 6, 1979, https://jonimitchell.com/library/view.cfm?id=95 (accessed June 2, 2019).
24. Sue Graham Mingus, Tonight at Noon: A Love Story (Cambridge, MA: Da Capo Press, 2003).
Outsider Lucy Maud Montgomery
25. Margaret Atwood, “Nobody Ever Did Want Me,” Guardian, March 28, 2008, https://www.theguardian.com/books/2008/mar/29/fiction.margaret atwood (accessed April 5, 2019).
26. Annette Lyon, “L. M. Montgomery and My Truth About Depression,” Medium, March 13, 2018, https://medium.com/@annettelyon/l-m-montgomery-my-truth-about-depression-ecdf99ce6077 (accessed April 5, 2019).
27. Historica Canada, “Lucy Maud Montgomery,” “Heritage Minutes,” 2018, https://www.historicacanada.ca/content/heritage-minutes/lucy-maud-montgomery (accessed April 5, 2019).
28. Kate Macdonald Butler, “The heartbreaking truth about Anne’s creator,” Globe and Mail, September 20, 2008, https://www.theglobeandmail.com/incoming/the-heartbreaking-truth-about-annes-creator/article17971607/ (accessed April 5, 2019).
Equals at Arthur’s Round Table Niall McNeil and Marcus Youssef
29. Niall McNeil, personal conversation with the author, May 17, 2017.
30. Niall McNeil and Marcus Youssef, King Arthur’s Night and Peter Panties (Vancouver, BC: Talonbooks, 2018).
31. McNeil and Youssef, King Arthur’s Night and Peter Panties.
32. Becca Clarkson, “Vancouver Theatre Company to Take the Stage in Hong Kong,” Vancouver magazine, January 15, 2019, http://vanmag.com/city/vancouver-theatre-company-to-take-the-stage-in-hong-kong/ (accessed February 1, 2019).
Changing the World, One Painting at a Time Yaniv Janson
33. Yaniv Daniel Janson, Changing the World—One Painting at a Time (Hamilton, New Zealand: Ecosynergy Creative, 2010).
34. Janson, Changing the World.
35. Yaniv Janson, Please Do Touch, Y-Artism Creative, New Zealand, 2017.
36. Yaniv Janson, blog, http://y-learning.blogspot.com/ (accessed August 6, 2018).
Lesson 8: Awaken to All Your Senses
Touching the Rock John Hull
1. Mary D’Apice, “Interview with John Hull, Author of Touching the Rock: An Experience of Blindness,” VisionAware, https://www.visionaware.org/info/emotional-support/personal-stories/eye-conditions-personal-stories/interview-with-john-hull-author-of-touching-the-rock-an-experience-of-blindness/1235 (accessed June 16, 2019).
2. D’Apice, “Interview with John Hull.”
3. John Hull, Touching the Rock: An Experience of Blindness (New York: Pantheon Books, 1990).
4. John Hull, “Do You Think I’m Stupid?” JohnMHull.biz, http://www.johnmhull.biz/Do%20you%20think%20I%20am%20stupid.html.
5. Hull, Touching the Rock.
6. Saskia Baron, “How my husband saw blindness as a ‘dark, paradoxical gift,’” Guardian, February 11, 2017, https://www.theguardian.com/lifeandstyle/2017/feb/11/john-hull-notes-on-blindness-wife-marilyn.
Awakening to Our Senses Evelyn Glennie
7. Evelyn Glennie, “What Makes Us Human,” January 1, 2015, https://www.evelyn.co.uk/what-makes-us-human/ (accessed June 28, 2018).
8. Glennie, “What Makes Us Human.”
9. Touch the Sound: A Sound Journey with Evelyn Glennie, documentary, 2004.
10. Evelyn Glennie, “Hearing Essay,” https://www.evelyn.co.uk/hearing-essay/ (accessed June 28, 2018).
11. Katherine Ellison, “Tune In, Turn On,” Mindful, July 29, 2016, https://www.mindful.org/tune-in-turn-on/.
The Swoon of the Sensuous DJ Savarese
12. Deej, documentary, 2017, https://www.deejmovie.com/.
13. DJ Savarese, A Doorknob for an Eye (Unrestricted Editions, 2017).
14. Deej, https://www.deejmovie.com/poetry.
15. Deej.
The Sounds of Science Wanda Díaz-Merced
16. Wanda Díaz-Merced, “How a Blind Astronomer Found a Way to Hear the Stars,” TED Talk, February 2016.
17. Díaz-Merced, “How a Blind Astronomer Found a Way to Hear the Stars.”
18. Star Songs, Harvard-Smithsonian Center for Astrophysics, https://www.cfa.harvard.edu/sed/projects/star_songs/pages/xraytosound.html.
19. Wanda Díaz-Merced, “The Normalcy Curve,” Women in Astronomy, http://womeninastronomy.blogspot.com/2015/03/the-normalcy-curve.html (accessed June 29, 2019).
Labyrinth Jorge Luis Borges
20. Patrick Kurp, “Review: Poems of the Night,” Quarterly Conversation, December 6, 2010, http://quarterlyconversation.com/poems-of-the-night-by-jorge-luis-borges (accessed June 29, 2019).
21. Jorge Luis Borges, Labyrinths (New York: New Directions, 2007).
22. Shiv K. Kumar, “Conversations with Jorge Luis Borges, Punch, November 1, 2016, http://thepunchmagazine.com/the-byword/interviews/conversations-with-jorge-luis-borges.
23. Jorge Luis Borges, “Blindness,” 1977, https://www.gwern.net/docs/borges/1977-borges-blindness.pdf (accessed June 29, 2019).
Transformer Man Neil Young
24. Neil Young, “Transformer Man,” Genius, https://genius.com/Neil-young-transformer-man-lyrics.
25. Neil Young, MuchMusic TV interview, 1986, quoted in Review of Disability Studies: An International Journal, http://azrefs.org/review-of-disability-studies-an-international-journal.html?page=2.
26. Jimmy McDonough, Shakey: Neil Young’s Biography (New York: Random House, 2002).
27. McDonough, Shakey.
28. Dangerous Minds, “Neil Young and Family Discuss Model Trains and His Son’s Cerebral Palsy on Nickelodeon, 1994,” February 5, 2015, http://dangerousminds.net/comments/neil_young_family_discuss_model_trains (accessed June 3, 2019).
29. McDonough, Shakey.
In My Language Mel Baggs
30. Mel Baggs, YouTube, In My Language, YouTube, January 14, 2007, https://www.youtube.com/watch?v=JnylM1hI2jc.
31. Amanda Baggs, “Why we should listen to ‘unusual’ voices,” Anderson Cooper 360 Blog, CNN, http://www.cnn.com/CNN/Programs/anderson.cooper.360/blog/2007/02/why-we-should-listen-to-unusual-voices.html (accessed June 30, 2019). (Amanda Baggs now goes by Mel Baggs.)
32. Baggs, “Why we should listen to ‘unusual’ voices.”
A Little Learning Is a Dangerous Thing Alexander Pope
33. Alexander Pope, The Works of Alexander Pope, Volume VI (Farmington Hills, MI: Gale ECCO, 2010).
34. Lauren Riddell, “Alexander Pope: Grievous Disability and Inspired Writing,” the cultural me, January 29, 2019, https://thecultural.me/alexander-pope-grievous-disability-and-inspired-writing-989986 (accessed June 3, 2019).
35. Riddell, “Alexander Pope.”
36. Alexander Pope, “An Essay on Criticism,” Poetry Foundation, https://www.poetryfoundation.org/articles/69379/an-essay-on-criticism (accessed June 3, 2019).
By and for Equals Nadia Duguay and Exeko
37. Nadia Duguay and Agnès Lorgueilleux, “Fighting Social Exclusion, One Encounter at a Time,” Stanford Social Innovation Review, Winter 2018, https://ssir.org/articles/entry/fighting_social_exclusion_one_encounter_at_a_time (accessed June 28, 2019).
38. Exeko, https://exeko.org/en.
39. Exeko.
40. Exeko.
41. Duguay and Lorgueilleux, “Fighting Social Exclusion, One Encounter at a Time.”
Lesson 9: Nothing about Us without Us
What Barb Goode Taught Me
1. Barb Goode, The Goode Life: Memoirs of Disability Rights Activist Barb Goode (Vancouver, BC: Spectrum Press, 2011).
Climate Striking Greta Thunberg
2. John Sutter and Lawrence Davidson, “Teen tells climate negotiators they aren’t mature enough,” CNN, December 17, 2018, https://www.cnn.com/2018/12/16/world/greta-thunberg-cop24/index.html (accessed May 4, 2019).
3. Greta Thunberg, “We live in a strange world . . . ,” New Story Hub, April 2, 2019, http://newstoryhub.com/2019/04/we-live-in-a-strange-world-greta-thunbergs-acceptance-speech-at-the-goldene-kamera-awards/ (accessed May 4, 2019).
4. Jonathan Watts, “Greta Thunberg, schoolgirl climate change warrior: ‘Some people can let things go. I can’t,” March 11, 2019, Guardian, https://www.theguardian.com/world/2019/mar/11/greta-thunberg-schoolgirl-climate-change-warrior-some-people-can-let-things-go-i-cant (accessed May 4, 2019).
5. Greta Thunberg, Facebook, February 2, 2019, https://www.facebook.com/732846497083173/posts/767646880269801/ (accessed May 4, 2019).
6. Thunberg, Facebook.
Independent Living Ed Roberts
7. Victoria Dawson, “Ed Roberts’ Wheelchair Records a Story of Obstacles Overcome,” Smithsonian, March 13, 2015, https://www.smithsonianmag.com/smithsonian-institution/ed-roberts-wheelchair-records-story-obstaclesovercome-180954531/ (accessed May 8, 2019).
8. Ed Roberts: Free Wheeling, documentary, 1995, https://www.youtube.com/watch?v=ci3ek-tqiGQ.
9. ILUSA, Ed Roberts, The Father of Independent Living, https://www.ilusa.com/links/022301ed_roberts.htm (accessed May 8, 2019).
10. “About Ed: Ed Roberts Day 2018,” YouTube, https://www.youtube.com/watch?v=KMYDoCr5lEg.
11. “About Ed: Ed Roberts Day 2018.”
Accidental Activist Alice Wong
12. Melissa Hung, “The Most Damaging Way Movies Portray People with Disabilities,” HuffPost, September 28, 2018, https://www.huffingtonpost.ca/entry/disability-media-movies-alice-wong_n_5bad0e22e4b0425e3c215d86 (accessed June 10, 2019).
13. Sarah Ruiz-Grossman, “You Don’t Have to March to Be in the Resistance,” HuffPost, May 25, 2017, https://www.huffingtonpost.ca/entry/disability-activism-resistance-alice-wong_n_59270f76e4b061d8f8201e8f (accessed June 10, 2019).
14. Nicola Griffith, “Resistance and Hope: An Interview with Alice Wong,” October 16, 2018, https://nicolagriffith.com/2018/10/16/resistance-hope-an-interview-with-alice-wong/ (accessed June 10, 2019).
15. Ruiz-Grossman, “You Don’t Have to March to Be in the Resistance.”
16. Alice Wong, “Valuing Activism of All Kinds,” Rooted in Rights, https://www.rootedinrights.org/valuing-activism-of-all-kinds/ (accessed June 10, 2019).
Manifesto for Citizenship Carmen Papalia
17. Carmen Papalia, “You Can Do It With Your Eyes Closed,” Art 21, October 2014, http://magazine.art21.org/2014/10/07/you-can-do-it-with-your-eyes-closed/#.XRgOedNKhBw (accessed November 21, 2018).
18. Jacqueline Bell, “Practicing Accessibility: An Interview with Carmen Papalia,” Field, issue 5 (Fall 2016), http://field-journal.com/issue-5/an-interview-with-carmen-papalia (accessed November 21, 2018).
19. Bell, “Practicing Accessibility.”
Disability Rocks Heavy Load
20. “Disability Punk Band Heavy Load Says, Stay Up Late,” Disabled World, editorial, July 15, 2009, https://www.disabled-world.com/editorials/heavy-load.php (accessed January 13, 2019).
21. Alexis Petridis, “We Played Mencap and they told us to turn it down,” Guardian, https://www.theguardian.com/music/2008/sep/13/popandrock.musicdocumentary (accessed January 13, 2019).
22. PaulR, “A manifesto for an ordinary life,” Stay Up Late, December 14, 2018, https://stayuplate.org/a-manifesto-for-an-ordinary-life/ (accessed January 13, 2019).
The Equality Effect Fiona Sampson
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Breaking Bad Barriers RJ Mitte
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Everything Is about Us Carla Qualtrough
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Did You Know . . .
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Lesson 10: There Is No Independence without Interdependence
Becoming Human Jean Vanier
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Love’s Labor Eva Kittay
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Purple, Green, and Yellow Robert Munsch
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Moonbeams Ian Brown
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The Four Walls of Her Freedom Donna Thomson
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The Untouchables Philippe Pozzo di Borgo and Abdel Sellou
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Poem for Michael Kirsteen Main
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There Is No Independence without Interdependence Bonnie Sherr Klein
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